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NLS Reference Circulars

Parents' Guide to the Development of Preschool Children with Disabilities: Resources and Services

2004

Introduction

Parents of preschool children with visual or physical disabilities will find in this reference circular a wide range of information to assist them in promoting their children's development from infancy to age five.

The listing includes organizations, producers, and distributors who offer materials and services at the national level. These organizations may be contacted directly for additional information.

At the time this circular was compiled, the books included in the bibliography were in print and should be available from local bookstores or directly from the publishers. Materials listed may also be available on loan from local public libraries.

Contents

Sources of Special-Format Materials

Catalogs or descriptive materials may be requested from the sources indicated. Additional resources can be found at local bookstores and public libraries.

American Action Fund for Blind Children and Adults
1800 Johnson Street
Baltimore, MD 21230
(410) 659-9315
and
18440 Oxnard Street
Tarzana, CA 91356
actionfund@nfb.org
www.actionfund.org

Produces and distributes Twin Vision (print/braille) books free of charge. Also sponsors a free monthly children's book club featuring braille titles selected from popular children's reading series. Maintains a free lending library of Twin Vision and braille books for kindergarten through grade twelve through the California address.

American Printing House for the Blind
P.O. Box 6085
Louisville, KY 40206-0085
(502) 895-2405
800-223-1839
(502) 899-2274 fax
info@aph.org
www.aph.org

Designated and funded by an 1879 Act of Congress as the official source of educational texts (primary through secondary level) for students with visual impairments residing in the United States and its territories. Produces braille, audiocassette, and large-print books for children; pre-braille flash cards and word cards with braille and large print; reading-readiness series such as the Patterns Pre-braille Program; and tactile discrimination and visual and sensory stimulation materials and parents' handbooks. Family Life catalog of products and services free upon request.

Blind Children's Fund
311 West Broadway, Suite 1
Mt. Pleasant, MI 48858
(989) 779-9966
(989) 799-0015 fax
bcf@blindchildrensfund.org
www.blindchildrensfund.org

Promotes the development of materials and methods pertaining to the growth, development, and education of infants and young children who are blind, have visual impairments, or multiple disabilities. Sells board books, large-print storybooks, parent guidebooks, selected toys, and audio cassettes.

Braille Institute Universal Media Services
741 North Vermont Avenue
Los Angeles, CA 90029-3594
(323) 906-3104
800-272-4553
info@brailleinstitute.org
www.universalmediaservices.org

Produces a series of multi-sensory storybooks designed specifically for pre- schoolers entitled Dots for Tots. Each kit combines a print/braille book, descriptive audiocassette of the story, and hard-plastic toys that represent characters or objects in the story. Also produces Newbery and Caldecott award-winning books and other classic and contemporary literature in braille and dual vision (print/braille). These books are part of the braille special collection program, that seeks to increase braille literacy by offering free books to children with visual impairments.

Christian Record Services, Inc.
Free Lending Library
P.O. Box 6097
Lincoln, NE 68506-0097
(402) 488-0981
(402) 488-7582 fax
info@christianrecord.org
www.chritstianrecord.org

Full Vision (print/braille) books and Bible stories.

Creative Adaptations for Learning
38 Beverly Road
Great Neck, NY 11021-1330
(516) 466-9143
calinfo@cal-s.org
www.cal-s.org

Produces a variety of tactile (embossed) materials such as alphabet, shape, and language-development flashcards; nursery rhymes with tactile illustrations; and Touch the Stars II, a book on astronomy.

Crestwood Communication Aids, Inc.
6625 North Sidney Place, Department 21F
Milwaukee, WI 53209
(414) 352-5678
(414) 352-5679 fax
crestcomm@aol.com
www.communicationaids.com

Sells communication devices and adapted toys with switch operation for children with special needs. Publishes an annual catalog; free.

Exceptional Teaching Aids, Inc.
2012 Woodbine Avenue
Castro Valley, CA 94546
(510) 682-4859
800-549-6999
(510) 582-5911 fax
ExTeaching@aol.com
www.exceptionalteaching.com

Produces and sells adaptive products for children with special needs, including braille blocks and pegboards. Catalog available upon request.

A Gentle Wind
P.O. Box 3103
Albany, NY 12203
(518) 482-9023
888-FUN-SONG (888-386-7664)
hello@gentlewind.com
www.gentlewind.com

Sells audiocassette and compact-disc recordings of stories, folktales, and songs for preschool and early elementary school students. Price: $9.95- $39.95.

Library Reproduction Services
14215 South Figueroa Street
Los Angeles, CA 90061
(310) 354-2610
800-255-5002
(310) 354-2601 fax
lrsprint@aol.com
www.lrs-largeprint.com

Offers large-print unabridged reproductions of award-winning and classic juvenile and adult literature in 18- or 20-point type. Also produces textbooks and educational support materials, and will custom-produce material on request. Maintains an online catalog of more than 15,000 titles.

Live Oak Media
P.O. Box 652
Pine Plains, NY 12567
800-788-1121
866-398-1070 fax
info@liveoakmedia.com
www.liveoakmedia.com

Sells audio and video recordings of award-winning children's books, read- along picture books in English and Spanish, read-along books for beginning readers, and materials on compact disc, video, and DVD. Price: $16.95- $54.95.

Louis Braille Center
320 Dayton Street, Suite 125
Edmonds, WA 98020
(425) 776-4042
(425) 778-2384 fax
lbc@louisbraillecenter.org
www.louisbraillecenter.org

Produces and sells braille editions of books by A.A. Milne, Beatrix Potter, and other popular children's authors.

National Braille Press
88 Saint Stephen Street
Boston, MA 02115
(617) 266-6160
888-965-8965
(617) 437-0456 fax
orders@nbp.org
www.nbp.org

Promotes literacy for individuals who are blind and deaf-blind by printing and selling braille and print/braille books and transcribing printed materials. Offers a children's book club featuring a new book every month in print/braille format for preschool to grade 3. Promotes a national children's braille literacy program, "Read Books! Because Braille Matters," to families with blind and visually impaired children, from birth to age seven by sending age-appropriate print/braille books in English or Spanish. Also produces a print/braille children's calendar and a braille primer for parents, Just Enough to Know Better.

National Lekotek Center
3204 West Armitage Avenue
Chicago, Il 60647
(773) 276-5164
800-366-PLAY toy resource hotline
(773) 276-8644 fax
lekotek@lekotek.org
www.lekotek.org

Principal Publication: Toys "R" Us Toy Guide for Differently-Abled Kids

Selects and analyses more than 5,000 traditional and adapted toys for use by children with disabilities and makes them available for borrowing through their toy-lending libraries throughout the United States.

National Library Service for the Blind and Physically Handicapped
Library of Congress
Washington, DC 20542
(202) 707-5100
800-424-8567
(202) 707-0744 TTY
(202) 707-0712 fax
nls@loc.gov
www.loc.gov/nls

Provides a free national library program of print/braille, braille, and cassette recorded nursery rhymes, stories, and other books to eligible readers of all ages through a network of cooperating state and local libraries.

Seedlings
Braille Books for Children
P.O. Box 51924
Livonia, MI 48151-5924
(734) 427-8552 voice and fax
800-777-8552
info@seedlings.org
www.seedlings.org

Sells print/braille, braille, and picture books for infants and young children (including the Touch and Feel series). Yearly catalog available upon request.

Volunteer Braillists and Tapists, Inc.
517 North Segoe Road, #200
Madison, WI 53705
(608) 233-0222
(608) 233-0249 fax
vbti@juno.com
www.vbti.org

Operates a free lending library of print/braille books of classic literature and popular children's authors.

Weston Woods
143 Main Street
Norwalk, CT 06851
(203) 845-0197
800-243-5020
(203) 845-0498 fax
www.teacher.scholastic.com/products/westonwoods

Has English-and Spanish-language stories in book-cassette or book- compact disc combinations for preschool and elementary school children. Produces a foreign-language video collection in French, Japanese, and Mandarin Chinese for that age group also. Free curriculum guides included with each video purchased. Price: $12.95-$89.95.

National Organizations Concerned with Infants, Toddlers, and Preschoolers with Disabilities

American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600
800-232-5463
(212) 502-7662 TTY
(212) 502-7777 fax
afbino@afb.net
www.afb.org

Principal publication: Journal of Visual Impairment and Blindness, monthly

Serves as a national clearinghouse for information on blindness and related topics. Promotes the development of educational, rehabilitation, and social welfare services for blind and visually impaired children and adults.

American Foundation for the Blind
National Literacy Center
100 Peachtree Street, Suite 620
Atlanta, GA 30303
(404) 525-2304
(404) 525-659-6957 fax
literacy@afb.net
www.afb.org/Section.asp?SectionID=50

Develops and promotes a wide variety of initiatives to improve literacy among people who are blind or who have low vision. Provides up-to-date resources and workshops for professionals who work with blind and visually impaired children, their parents, and other family members. One resource in particular, Connecting the Dots, includes material and factsheets on promoting braille literacy for children with visual impairments.

American Juvenile Arthritis Organization (AJAO)
1330 West Peachtree Street
Atlanta, GA 30309
(404) 965-7538
help@arthritis.org
www.arthritis.org/communities/juvenile_arthritis/children_young_adults.asp

Principal publication: Kids Get Arthritis Too, 6 issues

A council of the Arthritis Foundation, AJAO serves the special needs of children, teens, and young adults with childhood rheumatic diseases and their families. Provides education and support programs through local offices, referrals to pediatric rheumatologists, produces free brochures and funds research, and sponsors a summer camp.

American Printing House for the Blind
Educational and Advisory Services Department
P.O. Box 6085
Louisville, KY 40206-0085
(502) 895-2405
800-223-1839
(502) 899-2274 fax
info@aph.org
www.aph.org

Provides services to families through the project Babies Count: National Registry for Children with Visual Impairment from Birth to Three Years. Sponsors a series of workshops and training classes for parents and educators that focus on curriculum areas and topics vital to the education of blind and visually impaired children. Produces educational material, including activity sheets, books, and games for parents and preschool through high school-age children. Provides Family Life, a catalog of products and services for families with visually impaired children of all ages, free upon request.

Beach Center on Disability
University of Kansas
Haworth Hall
1200 Sunnyside Avenue, Room 3136
Lawrence, KS 66045-7534
(785) 864-7600
(785) 864-3434 TTY
(785) 864-7605 fax
beachcenter@ku.edu
www.beachcenter.org

Principal publication: Beach Center Newsletter, quarterly

Sponsors a parent-support program that matches veteran parents of children with special needs with new parents. Offers online discussion groups for parents and professionals. Publishes research reports addressing family well-being across the life-span.

Birth Defect Research for Children, Inc.
930 Woodcock Road, Suite 225
Orlando, FL 32803
(407) 895-0802
staff@birthdefects.org
www.birthdefects.org/

Principal publication: Birth Defect News, monthly, via e-mail

Provides parents and expectant parents with information about birth defects and support services. Has a parent-matching program to link families who have children with similar birth defects. Sponsors the National Birth Defect Registry, a research project to study associations between birth defects and exposures to radiation, medication, alcohol, smoking, and toxins.

Blind Childrens Center
4120 Marathon Street
Los Angeles, CA 90029-3584
(323) 664-2153
800-222-3567 in California
800-222-3566 in United States
(323) 665-3828 fax
www.blindcntr.org

Provides education, therapy, and support to parents and families of children with visual impairments and with multiple handicaps including blindness. Works with children from infancy to age five in a classroom setting and prepares them for mainstreaming in elementary grades. Publishes educational books and videos for parents and professionals.

Council for Exceptional Children (CEC)
1110 North Glebe Road, Suite 300
Arlington, VA 22201-5704
(703) 620-3660
888-232-7733
866-915-5000 TTY
(703) 264-9494 fax
service@cec.sped.org
www.cec.sped.org

Principal publications:

Improves educational outcomes for individuals with disabilities. Advocates for governmental policies, sets professional standards, and provides professional development training. Offers print and nonprint publications. The Yes I Can! Foundation for Exceptional Children designs and implements programs for children and youths with disabilities.

Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
(301) 951-4422
800-344-4823 (800-FIGHT CF)
(301) 951-6378 fax
info@cff.org
www.cff.org/home

Principal publication: Commitment, 2-3/year

Supports medical research and legislative action to achieve its mission of finding a cure or control for cystic fibrosis and to improve the quality of life for people with the disease. Serves as an information resource.

DB-LINK
National Information Clearinghouse on Children Who Are Deaf-Blind
Teaching Research
Western Oregon University
345 North Monmouth Avenue
Monmouth, OR 97361
800-438-9376
800-854-7013 TTY
dblink@tr.wou.edu
www.tr.wou.edu/dblink

Federally funded projects that provide assistance and training opportunities to families, teachers, other professionals, and agencies involved with deaf- blind children (birth to age twenty-two). Most states have a deaf-blind project. Types of services vary from state to state but include identification of children who are deaf-blind, workshops and other types of training events, consultations, online courses, newsletters, opportunities for parent- to-parent contact, and family retreats.

Disability Rights Education and Defense Fund, Inc. (DREDF)
Main Office
2212 Sixth Street
Berkeley, CA 94710
(510) 644-2555 voice and TTY
(510) 841-8645 fax
dredf@dredf.org
www.dredf.org/
and
Government Affairs Office
1730 M Street NW, Suite 801
Washington, DC 20036
(202) 986-0375
(202) 833-2116 fax

Principal publication: DREDF News, periodic

Acts as a national law and policy center dedicated to protecting and advancing the civil rights of people with disabilities through legislation, litigation, advocacy, and technical assistance. Educates and trains attorneys, advocates, persons with disabilities, and parents of children with disabilities.

Easter Seals
230 West Monroe Street, Suite 1800
Chicago, IL 60606
(312) 726-6200
800-221-6827
(312) 726-4258 TTY
(312) 726-1494 fax
www.easterseals.com/site/PageServer

Principal publication: Newsletter, monthly, via e-mail

Assists children and adults with disabilities and their families through a nationwide network of service sites. Provides family focused services that are tailored to meet the specific needs of the community it serves and may include child care, medical rehabilitation, and camping.

Epilepsy Foundation
4351 Garden Cityi Drive
Landover, MD 20785-7223
800-332-1000
www.epilepsyfoundation.org
www.epilepsyfoundation.org/contestacion/index.cfm (In Spanish)

Principal publications:

Serves children and adults with seizures through research, education, service, and advocacy. Maintains the National Epilepsy Library and online eCommunities Interest Groups.

Family Voices National Office
2340 Alamo SE, Suite 102
Albuquerque, NM 87107
(505) 872-4774
888-835-5669
(505) 872-4780 fax
kidshealth@familyvoices.org
www.familyvoices.org

Principal publication: Voices, bimonthly

Serves as a grassroots clearinghouse for information and education concerning the healthcare of children with special health needs.

The Hadley School for the Blind
700 Elm Street
Winnetka, IL 60093-0299
(847) 446-8111
800-323-4238
(847) 446-9916 fax
info@Hadley.edu
www.hadley-school.org

Offers distance-education courses for parents of blind or deaf-blind children through its family education program. Provides teaching techniques and guidelines for parents to help their children reach developmental milestones. Other courses include toy selection and guidance, orientation and mobility, and daily living skills.

Juvenile Diabetes Research Foundation International
120 Wall Street
New York, NY 10005-4001
800-533-2873 (800-533-CURE)
(212) 785-9595 fax
info@jdrf.org
www.jdrf.org

Principal publication: Countdown for Kids, quarterly

Advocates and supports research to find a cure for juvenile diabetes and its complications. Sells publications.

Lighthouse International
Child Development Center
111 East 59th Street
New York, NY 10022-1202
(212) 821-9200
800-829-0500
(212) 821-9713 TTY
(212) 821-9705 fax
infor@lighthouse.org
www.lighthouse.org/cdc/index

Principal publication: EnVision, 2/year

Provides training for parents of children with visual impairments and the professionals working with them. Works with schools, day care centers, and health and human services organizations to facilitate early identification of visual problems in children and to design strategies that enhance development. Conducts empirical studies in fields of child development, family systems, and education as they relate to vision loss.

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
888-663-4637 and 800-925-1855 (in Spanish)
(914) 997-4537 fax
askus@marchofdimes.com
www.marchofdimes.com and www.nacersano.org/ (in Spanish)

Principal publication: Mama magazine, annual

Maintains the Pregnancy and Newborn Health Education Center for confidential answers to questions about pregnancy, newborn screening, and related topics. Offers free brochures.

Muscular Dystrophy Association USA
3300 East Sunrise Drive
Tucson, AZ 85718
(800) 572-1717
mda@mdausa.org
www.mdausa.org/ and www.mdaenespanol.org/index.cfm (in Spanish)

Principal publications:

Offers support groups for individuals with neuromuscular diseases and their families and MDA summer camps. Produces publications and sponsors research into the causes of and treatments for neuromuscular diseases.

National Association for Parents of Children with Visual Impairments
(NAPVI)
P.O. Box 317
Watertown, MA 02471-0317
(617) 972-7441
800-562-6265
(617) 972 7444 fax
napvi@perkins.org
www.spedex.com/napvi

Principal publication: Awareness, quarterly

A membership organization that provides a national support and information network and a referral service for parents and families of children with visual impairment. Advocates for the educational needs and welfare of children who are blind or visually impaired. Initiates outreach programs.

National Dissemination Center for Children with Disabilities
(NICHCY)
P.O. Box 1492
Washington, DC 20013
800-695-0285 voice and TTY
(202) 884-8441 fax
nichcy@aed.org
www.nichcy.org/ and www.nichcy.org/spanish.htm (in Spanish)

Formerly National Information Center for Children and Youth with Disabilities (NICHCY). Serves as a national information center on disabilities and disability related issues, with a special focus on children and youth (birth to age twenty-two). Also serves as a central source of information on special education laws such as the Individuals with Disabilities Education Act (IDEA) and the No Child Left Behind Act. Produces state resource sheets, disability fact sheets, pamphlets on IDEA, and Individualized Education Plans (IEP). Publications in English and Spanish in print and online.

National Native American Families Together Parent Center
(NNAFT PC)
129 West Third Street
Moscow, ID 83843
(208) 885-3500
877-205-7501
(208) 885-3628 fax
naft@moscow.com
www.nativefamilynetwork.com

Principal publication: NAFT Newsletter, irregular

A federally funded parent training and information center that provides workshops and information to families about the Individuals with Disabilities Education Act (IDEA) and other relevant special education laws and regulations. Assists families in working with schools to develop educational programs for children with disabilities.

National Organization of Parents of Blind Children
National Federation of the Blind
1800 Johnson Street
Baltimore, MD 21230
(410) 659-9314
nfb@nfb.org
www.nfb.org

Principal publications:

Serves as a forum where parents can share experiences and offers guidance in rearing children with visual impairments. Promotes opportunity and equality for blind children at home and in society.

Perkins School for the Blind
175 North Beacon Street
Watertown, MA 02172
(617) 924-3434
(617) 926-2027 fax
www.perkins.org

Principal publication: The Lantern, 2/year

Residential and day school serves an international student body through its preschool program. Provides public awareness of blind and deaf-blind persons. Offers for a fee services such as consultation and counseling for parents and families, and diagnostic evaluations. Sponsors the Hilton/Perkins national program, a federally funded grant to improve services to deaf-blind children, emphasizing infant development, teacher training, and programs to help parents become organized. Through the Howe Press sells braille reading, writing, and educational products.

Spina Bifida Association of America
4590 MacArthur Boulevard NW, Suite 250
Washington, DC 20007-4226
(202) 944-3285
800-621-3141
(202) 944-3295 fax
sbaa@sbaa.org
www.sbaa.org

Principal publication: Insights, bimonthly

Seeks to find a cure and enhance the lives of individuals living with spina bifida.

TASH
29 West Susquehanna Avenue, Suite 210
Baltimore, MD 21204
(410) 828-8274
800-482-8274
(410) 828-1306 TTY
(410) 828-6706 fax
www.tash.org

Principal publications:

Formerly the Association for Persons with Severe Handicaps, it promotes the full inclusion and participation of persons with disabilities in all aspects of life and supports legislation and public policy to achieve this goal. Offers support services to families of infants, children and youths with autism, cerebral palsy, mental retardation, or other physical disabilities that make full integration a challenge.

Texas School for the Blind and Visually Impaired
1100 West 45th Street
Austin, TX 78756
(512) 454-8631
800-872-5273
(512) 206-9451 TTY
(512) 206-9450 fax
www.tsbvi.edu

Provides early childhood outreach programs and educational assessments of children with visual impairments and multiple disabilities statewide. Offers advocacy information, training and support to parents, family counseling, psychological testing, consultation, and referrals. Provides information on state and federal laws and programs, such as, supplemental security income (SSI). Some material available in Spanish. Sponsors the Texas deaf-blind project and publishes instructional materials for use by parents and professionals.

UCP National (aka United Cerebral Palsy)
1660 L Street NW, Suite 700
Washington, DC 20036
(202) 776-0406
800-872-5827
(202) 973-7197 TTY
(202) 776-0414 fax
webmaster@ucp.org
www.ucp.org/ and www.ucp.org/ucp_general.cfm/1/11788 (in Spanish)

Provides information on cerebral palsy and advocates for the rights of people with disabilities. Sponsors research related to the prevention of cerebral palsy. Offers a range of direct services through UCP affiliates.

Federal Agencies

Centers for Disease Control and Prevention
National Center on Birth Defects and Developmental Disabilities
4770 Buford Highway NE, Mail Stop F-35
Atlanta, GA 30341
(770) 488-7150
888-232-5929
(770) 488-7075 fax
www.cdc.gov/ncbddd/ and www.cdc.gov/ncbddd/defaulspan.htm (in Spanish)

Works to identify the causes of birth defects and developmental disabilities, to help children develop and reach their full potential, and to promote health and well-being among people of all ages with disabilities. Can search health topics and publications online.

Office of Special Education and Rehabilitative Services
U.S. Department of Education
400 Maryland Avenue SW
Washington, DC 20202-7100
(202) 245-7468
www.ed.gov/about/offices/list/osers/index.html

Provides a wide array of supports in special education, vocational rehabilitation and research to parents, individuals, school districts and states. Funds programs that serve infants, toddlers, children, and adults with disabilities. Offers information and technical assistance to parents of infants, toddlers, and children with disabilities, and to professionals who serve them.

Selected Bibliography, 1999-2004

This section cites literature from 1999-2004 concerning family relations, early childhood education, child development, and programs and services. It also includes selected classic titles. Many newsletters and journals of interest to parents are published by organizations that deal with a specific disability. These titles are listed in the National Organizations section. Subscriptions to the magazines listed in this section are available from the source given with each title.

Batshaw, Mark L., ed. Children with disabilities. 5th ed. Baltimore: Brookes Publishing Company, 2002. 870p. $69.95.

Batshaw, Mark L., ed. When your child has a disability: the complete sourcebook of daily and medical care. 2d rev. ed. Baltimore: Brookes Publishing Company, 2001. 467p. $22.95.

Brennan, Mary. Show me how: a manual for parents of preschool visually impaired and blind children. New York: AFB Press, 1982. 56p. $19.95. (11 Penn Plaza, Suite 300, NY 10001).

Bruder, Mary Beth. The individual family service plan (ISEP). Arlington, VA: Eric EC digest, #E605, 2000. Available online at ericec.org/digests/e605.html.

Castellano, Carol. Because books matter: reading braille books with young blind children. Boston: National Braille Press, nd. Free. [large print booklet]. Also available in Spanish. (88 St. Stephen Street, MA 02115).

Castellano, Carol, and Dawn Kosman. The bridge to braille: reading and school success for the young blind child. Baltimore: National Organization of Parents of Blind Children, 1997. 191p. $12.95. Distributed by National Braille Press.

Connecting the dots: a parent's resource for promoting early braille literacy. Atlanta: American Foundation for the Blind, National Literacy Program, 2002. [pamphlets/factsheets]. Free. (100 Peachtree Street, Suite 620, GA 30303).

Curran, Eileen P. Just enough to know better: a braille primer for sighted parents. 2d ed. Boston: National Braille Press, 1988. $15. (88 St. Stephen Street, MA 02115).

Directory for exceptional children: a listing of educational and training facilities. Boston: Porter Sargent Publishers, Inc. Biennial. $45. (11 Beacon Street, Suite 1400, MA 02108)

Early years: a series. London: Royal National Institute for the Blind, 1996. $29.95. [set of 4 booklets]. Distributed by AFB Press (11 Penn Plaza, Suite 300, New York, NY 10001).

"Early years - special issue." Future reflections, v. 23, Aug. 2004: 1-114. (entire issue).

Educating blind and visually impaired students: policy guidance from OSERS. Retrieved August 27, 2004. www.tsbvi.edu/agenda/osers-policy.htm

EP/exceptional parent magazine. Monthly. $39.95/year; $54.95/year for Canada and $57.95/year for other foreign countries. (P.O. Box 2078, Marion, OH 43306).

Ferrell, Kay Alicyn. Parenting preschoolers: suggestions for raising young blind and visually impaired children. New York: AFB Press, 1984. 28p. $50 for pack of 25. [booklet].

First steps: a handbook for teaching young children who are visually impaired. Los Angeles: Blind Childrens Center, nd. 203p. $35. (4120 Marathon Street, CA 90029).

Gold, Deborah, ed. Finding a new path: guidance for parents of young children who are visually impaired or blind. Toronto: Canadian National Institute for the Blind, 2002. 220p. $35. (1929 Bayview Avenue M4G 3E8 Canada). Distributed by American Foundation for the Blind.

Guide to resources produced by National Institute on Disability and Rehabilitation Research (NIDRR) Grantees: infants, children, and youth with disabilities. Austin: National Center for the Dissemination of Disability Research, 2004. 133p. Free. (Southwest Educational Development laboratory, 211 East Seventh Street, Suite 400, TX 78701).

Guide to toys for children who are blind or visually impaired. New York: Toy Industry Foundation, Inc., and American Foundation for the Blind, 2002. 26p. Free. (11 Penn Plaza, Suite 300, NY 10001).

Harrell, Lois. Touch the baby: blind and visually impaired children as patients: helping them respond to care. New York: AFB Press, 1984. 13p. $25 for a packet of 25. [booklet].

Hatton, Deborah D., R.A. McWilliam, and P.J. Winton. Infants and toddlers with visual impairments: suggestions for early interventionists. ERIC EC digest #E636, 2002. Available online at http://ericec.org/digests/e636.html.

Learning to play: common concerns for the visually impaired preschool child. Los Angeles: Blind Childrens Center, nd. 12p. $10. (4120 Marathon Street, CA 90029).

Library of Congress. National Library Service for the Blind and Physically Handicapped. Reference Section. Blindness and visual impairments: information and advocacy organizations. Washington: 2001. 56p. Free. Also available online at www.loc.gov/nls/reference/circulars/blindorg2001.html.

Library of Congress. National Library Service for the Blind and Physically Handicapped. Reference Section. Deaf-blindness: national resources and organizations. Washington: 2004. 21p. Free. Also available online at www.loc.gov/nls/reference/circulars/deafblind.html.

Library of Congress. National Library Service for the Blind and Physically Handicapped. Reference Section. Physical disabilities: information and advocacy organizations. Compiled by Carol Strauss. Washington: 2003. 48p. Free. Also available online at www.loc.gov/nls/reference/circulars/physical.html.

Lutkenhoff, Marlene, ed. Children with spina bifida: a parents' guide. Bethesda: Woodbine House, 1999. 405p. $16.95. (6510 Bells Mill Road, MD 20817).

Meyers, Laura. Dancing cheek to cheek: nurturing beginning social, play, and language interactions. Los Angeles: Blind Childrens Center, 1994. 33p. $10. [booklet]. (4120 Marathon Street, CA 90029).

Move with me: a parents' guide to movement development for visually impaired babies. Los Angeles: Blind Childrens Center, nd. 12p. $10. [booklet]. Also available in Spanish. (4120 Marathon Street, CA 90029).

Parenting a child with special needs. NICHCY news digest #20. 3rd ed. Washington: National Dissemination Center for Children with Disabilities, 2003. Available online at www.nichcy.org/pubs/newsdig/nd20txt.htm

Pogrund, Rona L., and Diane L. Fazzi, eds. Early focus: working with young children who are blind or visually impaired and their families. 2d ed. New York: AFB Press, 2002. 376p. $49.95. (11 Penn Plaza, Suite 300, NY 10001).

Powers, Michael D., ed. Children with autism: a parents' guide. 2d ed. Bethesda: Woodbine House, 2000. 427p. $17.95. (6510 Bells Mill Road, MD 20817).

Questions often asked by parents about special education services. 4th ed. Washington: National Dissemination Center for Children with Disabilities, 1999. 11p. Available online at www.nichcy.org/pubs/ideapubs/lg1txt.htm.

Schwartz, Sue. The new language of toys: teaching communication skills to children with special needs. 3rd ed. Bethesda, MD: Woodbine House, 2004. 249p. $18.95.

Selecting a program: a guide for parents of infants and preschoolers with visual impairments. Los Angeles: Blind Childrens Center, nd. 28p. $10. [booklet]. Also available in Spanish.

Simmons, Susan S., and Sharon O'Mara Maida. Reaching, crawling, walking let's get moving: orientation and mobility for preschool children. Los Angeles: Blind Childrens Center, 1992. 24p. $10.

Special Needs Advocate for Parents (Snap) report: information for families with special needs children of all ages and disabilities. Quarterly. (11835 West Olympic Blvd, Suite 465, Los Angeles, CA 90064). Available at www.snapinfo.org/News.

Standing on my own two feet. Los Angeles: Blind Childrens Center, nd. 36p. $10. (4120 Marathon Street, CA 90029).

Swenson, Anna M., and Frances Mary D'Andrea. The braille trail: parent/teacher guide. New York: AFB Press, 2002. $24.95. [Includes one activity book and a set of 20 braille sheets]. (11 Penn Plaza, Suite 300, NY 10001).

Takeshita, Bill. Developing your child's vision: a guide for parents of infants and young children with vision impairment. Los Angeles: Center for the Partially Sighted. 11p. [booklet]. Free. (12301 Wilshire, Suite 600, CA 90025). Also available online at www.low- vison.org.

What to know and where to go: parents' guide to No Child Left Behind-a new era in education. Washington: U.S. Department of Education, 2002. 32p. [booklet]. Free. (ED Pubs, Education Publication Center, U. S. Dept. of Education, P.O. Box 1398, Jessup, MD 20794).

Wright, Peter, and Pamela D. Wright. Wrightslaw: special education law. Hartfield, VA: Harbor House Law Press, 2004. 1st ed. 369p. $29.95. (P.O. Box 480, 23071).

Selected Internet Resources

Children with Diabetes
www.childrenwithdiabetes.com/index_cwd.htm
Offers an online community for children, families, and adults with diabetes.
DisabilityInfo.gov
www.disability.gov
Gateway to the federal government's disability related information and resources on topics that include education, transportation, health, and technology.
Early Childhood and Parenting (ECAP) Collaborative
http://ecap.crc.uiuc.edu
Located at the University of Illinois at Urbana-Champaign Children's Research Center, it funds a dozen projects on the education, care, and parenting of young children. Hosts online interactive chats and sponsors and manages electronic distribution lists on topics relevant to early childhood education. Includes an electronic distribution list entitled "Mother's perceptions of interactions with babies with and without disabilities in different cultures."
EP/Exceptional Parent magazine
www.eparent.com
Has an annual resource guide of national information and advocacy resources and support for the special needs community.
Family Center on Technology and Disability
www.fctd.info
Provides information and services dealing with assistive technology (AT) to organizations and programs that work with families of children and youth with disabilities. Has an extensive database of educational and AT resources, monthly newsletters, tutorials, and online discussions with AT experts.
Internet Resources for Special Children
www.irsc.org
Has links to topics such as adaptive equipment, blind and visually impaired, diseases, employment, laws, and recreation.
MedlinePlus
http://medlineplus.gov
A service of the U.S. National Library of Medicine and the National Institutes of Health (NIH), offers latest news, clinical trials, diagnosis, research, and treatment on various health topics. Includes information on law and policy and organizations dealing with a specific condition.
MUMS: National Parent-to-Parent Network
www.netnet.net/mums
A national parent-to-parent support network for parents or care providers of a child with any disability, rare disorder, chromosomal abnormality, or health condition. Maintains a database of more than eighteen thousand families.
National Early Childhood Technical Assistance Center
www.nectac.org
A program of the University of North Carolina at Chapel Hill, and funded by the U.S. Department of Education, Office of Special Education. Provides information and resources on the early childhood provisions of the Individuals with Disabilities Education Act (IDEA).
National Family Association for Deaf-Blind
www.nfadb.org
A network of families focusing on issues related to deaf-blindness.
National Organization for Rare Disorders
www.rarediseases.org
Acts as a clearinghouse for information about rare disorders. Educates the general public and medical professionals about the existence, diagnosis, and treatment of rare disorders.
Office of Rare Diseases, National Institutes of Health
http://rarediseases.info.nih.gov
Established by the National Human Genome Research Institute (NHGRI) and Office of Rare Diseases (ORD), the Genetic and Rare Diseases. The information center answers questions in English or Spanish from parents, patients, and healthcare professionals about genetic and rare diseases.
Parent Advocacy Coalition for Educational Rights (PACER) Center, Inc.
www.pacer.org
Information on special education, No Child Left Behind act, insurance, technology, and other issues affecting children with disabilities or special education. Produces and distributes newsletters, books, and videos. Organizes workshops for parents and professionals.
Social Security Online
www.ssa.gov
Information includes benefits, disability programs, forms and publications, and hearings. Offers print or online version of SSI child disability starter kit in English or Spanish.
Tourette's Syndrome "Plus"
www.tourettesyndrome.net
Has links to information on Tourette's Syndrome and other conditions.
Wrightslaw
www.wrightslaw.com
Up-to-date information about special education law and advocacy for children with disabilities.

Compiled by
Ruth Nussbaum
and
Carol Strauss
September 2004

Additional copies of this circular or any of the reference bibliographies or circulars listed below are available free on request from the Reference Section. They are also available on the NLS web site at www.loc.gov/nls/reference/index.html.

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Posted on 2014-12-02